Jewish World

Moment‘s Israel coverage provides in-depth analysis, on-the-ground reporting, insightful interviews and more. From politics to poetry to people, Moment has everything you need to stay in the know about the state of the Jewish state.


Tay-Sachs: A Parent’s Story

In the meantime, we took Evan to see a pediatric ophthalmologist. Midway through the exam, the doctor found a cherry-red spot on his retina. This news was like having a dagger stabbed through our hearts, since this was an almost certain indicator that Evan had Tay-Sachs disease. I contacted my OB-GYN, who, upon re-examining my records, discovered that I had actually tested positive as a Tay-Sachs carrier.

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The Road to Discovery

Rachel Chaikof was two years old when, with the help of cochlear implants, she heard her mother’s voice for the first time. “Cry Rachel, cry Rachel, ” her mother sang, alongside Rachel’s grandmother, who clapped her hands, watching her granddaughter, born completely deaf, respond to sound. “My family and I never understood why my sister and I were born deaf,” Rachel, now 30, says, “We knew it was genetic, but we never really had an answer.”

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