By | Sep 14, 2017

Jewish Genetic Diseases And Hereditary Cancers 

Einstein Victor Center for the Prevention of Jewish Genetic Diseases | (877) 401-1093

Program for Jewish Genetic Health Affiliated with Albert Einstein College of Medicine. 430-2000

Jewish Genetic Disease Center of Greater Phoenix | (480) 668-3347

Sarnoff Center for Jewish Genetics, Chicago | (312) 357-4718

Jewish Genetic Disease Consortium (JGDC)

Provides information and carrier screening along with resources for clergy and medical professionals. | (855) 642-6900

National Organization for Rare Diseases (NORD)

Provides information and services to patients and their families, rare disease organizations, clinicians and researchers and the pharmaceutical industry. Advocates for rare disease research, affordable medical treatment and orphan drug development. | (202) 588-5700

Counseling and Testing 

National Society of Genetic Counselors

Find a genetic counselor.


JScreen is a national non-profit initiative providing easy, at-home carrier testing on saliva for over 200 genetic diseases, including those most common in people with Ashkenazi, Sephardi and Mizrahi backgrounds. Genetic testing is recommended for anyone starting or expanding their family.


Since 1991, Myriad has remained the gold standard in Hereditary Cancer testing and life-saving research with over $1 billion in pioneering and life-saving research. Our commitment is to serve as both a trusted advisor to patients and healthcare professionals and a collaborator with the scientific community.


Offers DNA screening and genetic counseling.

Hereditary Cancers 

Basser Center forBRCA at Penn Medicine’s Abramson Cancer Center

Funds BRCA research and provides education and genetic counseling. | (215) 662-2748

Israel Cancer Research Fund

Supports cancer research in Israel with grants to outstanding cancer researchers whose labs are located in all the leading research institutions, universities and hospitals across Israel. | (212) 969-9800

Gift of Life Marrow Registry

Encourages marrow and stem cell donation through swab drives that register potential donors in the fight against blood cancer. | (561) 982-2900


Raises awareness, collaborates with the research and medical communities and supports people with breast, ovarian and related cancers. | (866) 288-7475

Breast & Ovarian Cancer


Supports Jewish women and their families diagnosed with breast or ovarian cancer as well as those who have an increased genetic risk of developing cancer. | (310) 409-2330

Bright Pink

Educates young women ages 18-45 about prevention and early detection of breast and ovarian cancer. | (312) 787-4412

Male Breast Cancer

Coalition (MBCC)

Provides resources and support for men diagnosed with breast cancer.

Pancreatic Cancer

The Sol Goldman Pancreatic Cancer Research Center at The Johns Hopkins Hospital

A multidisciplinary approach to treating patients with pancreatic cancer and related conditions.

(410) 933-7262

Let’s Win: Sharing Science Solutions for Pancreatic Cancer

Enables patients, doctors and researchers to share cutting-edge pancreatic cancer treatments and trials.

Prostate Cancer

Prostate Cancer Foundation | (310) 570-4700


Melanoma Research Foundation (MRF) | (202) 347-9675

Ashkenazi Jewish Genetic Diseases

Bloom’s Syndrome Foundation

Canavan Foundation | (866) 907-1847

Cystic Fibrosis Foundation | (301) 951-4422

Familia Dysautonomia Foundation | (212) 279-1066

Familial Hyperinsulinism

Fanconi Anemia Research Fund | (541) 687-4658

National Gaucher Foundation | (800) 504-3189

The Children’s Fund for Glycogen Storage Disease Research | (203) 272-7744

Joubert Syndrome 2 | (614) 864-1362

Lipoamide Dehydrogenase Deficiency (E3)

Maple Syrup Urine Disease 1B | (718) 741-2318

Murcolipidosis IV Foundation | (877) 654-5459

Nemaline Myopathy

National Niemann-Pick Disease Foundation | (920) 563-0930

Cure SMA (Spinal Muscular Atrophy) | (800) 886-1762

National Tay-Sachs & Allied Diseases Association | (617) 277-4463

Usher Syndrome Coalition | (978) 637-2625

Walker Warburg

Sephardi/Mizrahi Jewish Genetic Diseases

Sephardic Health Organization for Referral & Education

Cooley’s Anemia Foundation | (212) 279-8090

National Ataxia Foundation

Cystic Fibrosis Foundation | (301) 951-4422

MLD Foundation (Metachromatic Leukodystrophy) | (503) 656-4808

APS Type 1 Foundation (Autoimmune Polyglandular Syndrome)

Cure SMA (Spinal Muscular Atrophy) | (800) 886-1762

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