Jewish Genetic Diseases And Hereditary Cancers
Einstein Victor Center for the Prevention of Jewish Genetic Diseases
victorcenter.org | (877) 401-1093
Program for Jewish Genetic Health Affiliated with Albert Einstein College of Medicine.
einstein.yu.edu/centers/jewish-genetic-health | (718) 430-2000
Jewish Genetic Disease Center of Greater Phoenix
jewishgeneticsphx.org | (480) 668-3347
Sarnoff Center for Jewish Genetics, Chicago
jewishgenetics.org | (312) 357-4718
Jewish Genetic Disease Consortium (JGDC)
Provides information and carrier screening along with resources for clergy and medical professionals.
jewishgeneticdiseases.org | (855) 642-6900
National Organization for Rare Diseases (NORD)
Provides information and services to patients and their families, rare disease organizations, clinicians and researchers and the pharmaceutical industry. Advocates for rare disease research, affordable medical treatment and orphan drug development.
rarediseases.org | (202) 588-5700
Counseling and Testing
National Society of Genetic Counselors
Find a genetic counselor.
nsgc.org/page/find-a-genetic-counselor
JScreen
JScreen is a national non-profit initiative providing easy, at-home carrier testing on saliva for over 200 genetic diseases, including those most common in people with Ashkenazi, Sephardi and Mizrahi backgrounds. Genetic testing is recommended for anyone starting or expanding their family.
Myriad
Since 1991, Myriad has remained the gold standard in Hereditary Cancer testing and life-saving research with over $1 billion in pioneering and life-saving research. Our commitment is to serve as both a trusted advisor to patients and healthcare professionals and a collaborator with the scientific community.
Counsyl
Offers DNA screening and genetic counseling.
Hereditary Cancers
Basser Center forBRCA at Penn Medicine’s Abramson Cancer Center
Funds BRCA research and provides education and genetic counseling.
basser.org | (215) 662-2748
Israel Cancer Research Fund
Supports cancer research in Israel with grants to outstanding cancer researchers whose labs are located in all the leading research institutions, universities and hospitals across Israel.
icrfonline.org | (212) 969-9800
Gift of Life Marrow Registry
Encourages marrow and stem cell donation through swab drives that register potential donors in the fight against blood cancer.
giftoflife.org | (561) 982-2900
FORCE
Raises awareness, collaborates with the research and medical communities and supports people with breast, ovarian and related cancers.
facingourrisk.org | (866) 288-7475
Breast & Ovarian Cancer
Sharsheret
Supports Jewish women and their families diagnosed with breast or ovarian cancer as well as those who have an increased genetic risk of developing cancer.
sharsheret.org | (310) 409-2330
Bright Pink
Educates young women ages 18-45 about prevention and early detection of breast and ovarian cancer.
brightpink.org | (312) 787-4412
Male Breast Cancer
Coalition (MBCC)
Provides resources and support for men diagnosed with breast cancer.
Pancreatic Cancer
The Sol Goldman Pancreatic Cancer Research Center at The Johns Hopkins Hospital
A multidisciplinary approach to treating patients with pancreatic cancer and related conditions.
(410) 933-7262
Let’s Win: Sharing Science Solutions for Pancreatic Cancer
Enables patients, doctors and researchers to share cutting-edge pancreatic cancer treatments and trials.
Prostate Cancer
Prostate Cancer Foundation
pcf.org | (310) 570-4700
Melanoma
Melanoma Research Foundation (MRF)
melanoma.org | (202) 347-9675
Ashkenazi Jewish Genetic Diseases
Bloom’s Syndrome Foundation
bloomssyndrome.org
Canavan Foundation
canavanfoundation.org | (866) 907-1847
Cystic Fibrosis Foundation
cff.org | (301) 951-4422
Familia Dysautonomia Foundation
familialdysautonomia.org | (212) 279-1066
Familial Hyperinsulinism
jewishgeneticdiseases.org/diseases
Fanconi Anemia Research Fund
fanconi.org | (541) 687-4658
National Gaucher Foundation
gaucherdisease.org | (800) 504-3189
The Children’s Fund for Glycogen Storage Disease Research
curegsd.org | (203) 272-7744
Joubert Syndrome 2
jsrdf.org | (614) 864-1362
Lipoamide Dehydrogenase Deficiency (E3)
jewishgeneticdiseases.org/diseases
Maple Syrup Urine Disease 1B
msud-support.org | (718) 741-2318
Murcolipidosis IV Foundation
ml4.org | (877) 654-5459
Nemaline Myopathy
jewishgeneticdiseases.org/diseases
National Niemann-Pick Disease Foundation
nnpdf.org | (920) 563-0930
Cure SMA (Spinal Muscular Atrophy)
curesma.org | (800) 886-1762
National Tay-Sachs & Allied Diseases Association
ntsad.org | (617) 277-4463
Usher Syndrome Coalition
usher-syndrome.org | (978) 637-2625
Walker Warburg
jewishgeneticdiseases.org/diseases
Sephardi/Mizrahi Jewish Genetic Diseases
Sephardic Health Organization for Referral & Education
shoreforlife.org
Cooley’s Anemia Foundation
thalassemia.org | (212) 279-8090
National Ataxia Foundation
ataxia.org
Cystic Fibrosis Foundation
cff.org | (301) 951-4422
MLD Foundation (Metachromatic Leukodystrophy)
mldfoundation.org | (503) 656-4808
APS Type 1 Foundation (Autoimmune Polyglandular Syndrome)
apstype1.org
Cure SMA (Spinal Muscular Atrophy)
curesma.org | (800) 886-1762